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	<title>Survivor Story &#8211; CISC</title>
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	<description>Cancer	Information	&#38;	Support	Center</description>
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		<title>The Power Of Love</title>
		<link>https://cancerclubcisc.org/en/2020/01/29/the-power-of-love-2/</link>
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		<pubDate>Wed, 29 Jan 2020 08:51:51 +0000</pubDate>
				<category><![CDATA[Ovarian Cancer]]></category>
		<category><![CDATA[Survivor Story]]></category>
		<guid isPermaLink="false">https://cancerclubcisc.org/?p=2549</guid>

					<description><![CDATA[By: Dara Indah Lestari May the power of love of her children and God make Mama survive cancer. September 2017, our mother has stage 3C ovarian cancer. At that time Mama underwent surgery to remove cancer. After that, Mama had to undergo chemotherapy for 6 cycles, because the cancer had<a class="read-article" href="https://cancerclubcisc.org/en/2020/01/29/the-power-of-love-2/"> Selengkapnya..</a><p><a class="sd-more sd-all-trans" href="https://cancerclubcisc.org/en/2020/01/29/the-power-of-love-2/#more-2549">Read More</a></p>]]></description>
										<content:encoded><![CDATA[<p>By: Dara Indah Lestari</p>
<blockquote><p>May the power of love of her children and God make Mama survive cancer.</p></blockquote>
<p>September 2017, our mother has stage 3C ovarian cancer. At that time Mama underwent surgery to remove cancer. After that, Mama had to undergo chemotherapy for 6 cycles, because the cancer had spread to her body. Sad? Of course we as her children felt very sad because seeing mama had to experience such a heavy ordeal. I was worried that our time with Mama would not be long.</p>
<p><img decoding="async" class="size-full wp-image-2551 alignleft" src="https://cancerclubcisc.org/wp-content/uploads/2020/01/2-1.jpg" alt="" width="169" height="229" />As the doctor advised, Mama underwent 6 cycles of chemotherapy. Turns out it&#8217;s not enough. At the time of the re-examination, it appeared that the cancer cells were still there, so Mama had to undergo an additional 3 cycles of chemotherapy.</p>
<p>We think after the additional chemotherapy, the chemotherapy torture will stop whacking mom. It turns out that Mama&#8217;s struggle must continue. Mama still has to undergo additional chemotherapy until now.</p>
<p>During chemotherapy, a lot of effects occur, but we always pray for God&#8217;s help to continue looking after Mama. We also try to care for Mama with love. Praise God until now Mama still survive and gather with us.</p>
<p>The doctor never promised that Mama would get well. But doctors always say that the important thing is that the quality of life for Mama is maintained.</p>
<p>When asked what was the secret that Mama continued to survive with a smile facing chemotherapy for more than 2 years? It seems like a sincere power of love for her three children. We also love Mama very much and show our love in different ways.</p>
<p>Keep up the spirit of my beloved Mama. We will always be by your side to look after and care for you. With the help and blessing from the Lord Jesus, may Mama be given strength to face this cancer and be extended to a healthy age. Amen</p>
<p>Love U Mom &#8230;</p>
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		<title>HER2namatata, No Worries</title>
		<link>https://cancerclubcisc.org/en/2019/11/15/her2namatata-no-worries-2/</link>
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		<dc:creator><![CDATA[admin]]></dc:creator>
		<pubDate>Fri, 15 Nov 2019 14:22:52 +0000</pubDate>
				<category><![CDATA[Survivor Story]]></category>
		<guid isPermaLink="false">https://cancerclubcisc.org/?p=2445</guid>

					<description><![CDATA[My name is Isnaeni Purwanti. Friends call me Isnaeni, but my family and friends call me "Ully".<p><a class="sd-more sd-all-trans" href="https://cancerclubcisc.org/en/2019/11/15/her2namatata-no-worries-2/#more-2445">Read More</a></p>]]></description>
										<content:encoded><![CDATA[<p>My name is Isnaeni Purwanti. Friends call me Isnaeni, but my family and friends call me &#8220;Ully&#8221;.</p>
<p>After several years of battling cancer, I finally dared to share my story of life with breast mammae (breast cancer). I hope my story can open the eyes of all women to pay more attention to their own health and continue to dig up information about cancer, especially breast cancer. Also dare to see a doctor if something strange is felt by our body. With the courage to do early detection will be able to find out cancer early so that treatment is easier, cheaper and can extend our lives.</p>
<p>The lump that was left quiet</p>
<p>Starting when I showered in early 2012. I felt there was a small lump in the breast. I think the lump will disappear over time. After one month there was still one. I&#8217;m not worried yet. This lump is not visible, unless touched, and does not hurt.</p>
<p>Mid-2013. A year passed, the lump felt slightly enlarged and somewhat hardened. I started to panic. I gathered the courage to check the lump to a famous surgeon. The results did not match what I wanted to hear. He said my lump was malignant and had to be removed immediately. Hoping there were other opinions, I sought the opinions of two other surgeons. It turns out that the assessment is exactly the same!</p>
<p>Instead of following the experts&#8217; advice immediately, I went instead to alternative medicine. Why ?</p>
<p>My father has a friend who died of cancer. Shortly before he died, he told Father that there was a family or friend who had cancer and never had a knife (dissected)<br />
I did not feel pain at all, just felt a little annoyed with a lump that grew out of place<br />
I thought that if I was not long, I would at least not suffer in the hospital, and not bother the family</p>
<p>For two years I underwent alternative medicine routinely. It turns out that when calculated in Rupiah, how come it&#8217;s not cheap either &#8230; And my lump is getting bigger. I also began to feel sick, even though it was still within the threshold of my pain tolerance.</p>
<p>Sorry? &#8220;Yes,&#8221; really use it. (A lot of money came out, didn&#8217;t heal, instead it got worse. Regret later. So don&#8217;t follow in my footsteps.)</p>
<p>Breast cancer with HER2 positive</p>
<p>End of 2015, back to medical. The doctor that I went to suggested that I was mocked in advance, given the lump in my breast that was large enough and hardened, so it was not recommended for immediate surgery. Not satisfied, I went to several other surgeons, and again I got the same advice.</p>
<p>Gosh, what should I do? I am upset. Imagine going bald and vomiting. Work will definitely be disrupted and will be troublesome for the family. I tried to hold on, even though I couldn&#8217;t sleep for days because I endured unbearable pain. But in 2016, in the end I gave up and followed the doctor&#8217;s advice that I visited in 2015.</p>
<p>The good doctor advised me to start all treatments using BPJS, bearing in mind the journey would be long, he said. At that time I had not yet imagined a long, painful and struggling medical journey.</p>
<p>To ensure the severity of breast cancer, I underwent biopsy. The results are checked through Anatomic Pathology (PA). In addition, it is also recommended Imunino Histochemistry (CPI). PA only explains the level of tissue malignancy called grade and staging. With CPI it will be more detailed to find out what causes these naughty cells to develop in my body. From the results of the analysis, then the doctor can decide the right chemotherapy drug for cancer patients.</p>
<p>About two weeks, I have to wait for CPI results. While I feel uncomfortable with the wounds on my breast that have widened and become more painful since the biopsy. I could not sleep for days. Almost every day I go to the nearest hospital emergency room to ask for an injection of pain killers or pain medication. Although not eliminate the pain. This is the hardest year of my life. I look so haggard</p>
<p>Reading the results of the CPI, the cancer surgeon (Oncologist) immediately shook his head and referred to a doctor with the title KHOM (Consultant on Medical Hematology) for the Chemotherapy process.</p>
<p>My mind was scattered with the news about moving to another expert doctor again. Because actually I can not wait to be treated medically, while being referred again to another doctor, it means that I may have to wait a few more days maybe even weeks.</p>
<p>The CPI results show positive Estrogen hormone (ER +), positive Progesterone (PR +), HER2 is also positive (HER2 +). That is, hormonal (ER +, PR +) plays a role in increasing the severity of my cancer.</p>
<p>Then what is HER2? HER 2 stands for Human epidermal growth factor receptor 2 in the body. The natural language is &#8220;excess protein&#8221;. HER2 is what makes cancer cells grow and spread more</p>
<p>&nbsp;</p>
<p>&nbsp;</p>
<p>Source : <a href="https://isnaeniully.blogspot.com/2019/09/her2namatata-no-worries.html?m=1">https://isnaeniully.blogspot.com/2019/09/her2namatata-no-worries.html?m=1</a></p>
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		<title>When Allah Sent Me Disease</title>
		<link>https://cancerclubcisc.org/en/2019/11/14/when-allah-sent-me-disease/</link>
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		<pubDate>Thu, 14 Nov 2019 07:58:24 +0000</pubDate>
				<category><![CDATA[Survivor Story]]></category>
		<guid isPermaLink="false">https://cancerclubcisc.org/?p=2388</guid>

					<description><![CDATA[By: Husain Nurisman &#8220;Allah does not burden a person but according to his ability.&#8221; (Surat al-Baqarah: 286) The verse that I always remember in dealing with all the problems faced in life, including when sentenced to develop advanced colorectal cancer. I am a private employee on a daily basis handling<a class="read-article" href="https://cancerclubcisc.org/en/2019/11/14/when-allah-sent-me-disease/"> Selengkapnya..</a><p><a class="sd-more sd-all-trans" href="https://cancerclubcisc.org/en/2019/11/14/when-allah-sent-me-disease/#more-2388">Read More</a></p>]]></description>
										<content:encoded><![CDATA[<p>By: Husain Nurisman</p>
<p><em>&#8220;Allah does not burden a person but according to his ability.&#8221;</em></p>
<p>(Surat al-Baqarah: 286)</p>
<p>The verse that I always remember in dealing with all the problems faced in life, including when sentenced to develop advanced colorectal cancer.</p>
<p>I am a private employee on a daily basis handling various kinds of employee administration processes. I often deal with a variety of their health problems, ranging from those who have had a stroke, diabetes or the most feared disease, cancer. I really understand the sufferings faced. In the end many of them had to face the Creator because of the disease. However, I really did not expect that in the end they would also experience the pain they experienced.</p>
<p>At the end of 2016, for some reason suddenly I experienced severe constipation. Various attempts were made ranging from eating fruits to taking laxatives. But it still occurs again severe constipation.</p>
<p>Finally, I ventured to the doctor of internal medicine to treat constipation. At that time there was no suspicion at all that I would get cancer. Because at that time I did not experience the drastic weight loss that usually suffers from colorectal cancer sufferers, although sometimes I defecate (fresh) looks out of fresh blood. At that time the doctor had not yet given a diagnosis that led to cancer. To overcome my pain, the doctor gave me antibiotics for gastric medication, because it said there was the potential for severe irritation</p>
<p>The problem is not over. I tried to consult with a general surgeon. The surgeon judged that my problem was only a hemorrhoid problem. Not satisfied with the doctor&#8217;s answer, I consulted the company doctor. I was advised to go directly to a digestive surgeon. From this specialist I was asked to do a colonoscopy. From this, it was finally discovered that I had a malignant tumor (cancer).</p>
<p>When I found out I had cancer, I immediately imagined I would experience a very tiring period of treatment. The thought of facing death also haunted me.</p>
<p>The first step that needs to be done in the treatment of colorectal cancer is to remove the tumor in my intestine by cutting. The problem is that doctors cannot guarantee that after cutting it can be reattached. There is a possibility I will use a bag (stoma) for the disposal process.</p>
<p>Various kinds of thoughts arise over the treatment that must be done. Suggestions for using alternative medicine pathways also arrive and are tempting. They say the treatment of cancer by means of chemotherapy will not be healthy, but instead makes it suffer and aggravate the disease.</p>
<p>With various considerations and input, I decided to take the path of medical treatment. With medical treatment, in my opinion, the possibility has been tested.</p>
<p>Finally in early 2017 surgery to remove the tumor. After that proceed with the chemotherapy process. It turned out that the chemotherapy process is not an easy process to deal with, especially it has an impact on the patient&#8217;s mental condition. Therefore, in dealing with chemotherapy, it needs a lot of support from people around who can continue to provide encouragement so that the chemo process can be passed easily.</p>
<p>Side effects arising from chemotherapy drugs are relatively easy to overcome. Usually the doctor will give various kinds of drugs again to minimize side effects. Even more severe is the effect on the patient&#8217;s psyche, namely the patient&#8217;s enthusiasm for recovery and survival.</p>
<p>That is also what I experienced. As if the medicine given has no effect at all. There are only wild thoughts that always say, &#8220;How come the medicine is so yes, already suffering finally have to die too&#8221;. Those thoughts which finally brought me to the stage of feeling as the most disadvantaged person, felt angry why should I be affected by this disease.</p>
<p>Luckily, I have special people beside me. His wife and children who are continuously encouraging always remind that &#8220;God is in accordance with the prejudices of His servants&#8221;. If I think of not recovering, then it will not heal. Vice versa. If I think I will get well, with the permission of Allah, then I will get well. Those are the words that they always remind.</p>
<p>Alhamdulilah, I was also introduced to the intestinal Cancer Information Support Center (CISC) community. Joining the community allowed me to see that the suffering I was facing was nothing compared to other friends. They have to face dozens of times of chemotherapy and radiation. Also encountered several operations. However, they remain patient and trust to face it all. Truly extraordinary!</p>
<p>From there p</p>
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